Since May is Tourette Syndrome Awareness Month, we interviewed two outstanding teens with Tourette. It’s a disorder you may have heard of, but don’t know much about, so we decided to bring awareness about to our readers.
"Tourette Syndrome (TS) is a neurodevelopmental disorder characterized by uncontrollable motor and vocal tics. TS is not as rare as many think--an estimated 1 in 100 individuals has TS or another Tic Disorder and 50% have gone undiagnosed. TS affects all ages, genders, ethnicities, and races," explains Amanda Talty, President and CEO of the Tourette Association of America. “Additionally, 86% of people living with TS have a co-occurring condition, such as ADHD, OCD, depression, or anxiety. By raising awareness and increasing understanding, we can make a meaningful difference in the lives of those impacted by TS.”
Chloe and William are actively involved with the Tourette Syndrome of America’s (TAA) teen advocacy and ambassador programs. They participated in a Q+A about the ways Tourette impacts—and doesn’t—their lives. They are incredible role models, and we’re eager to share their stories.
Chloe Winston, Leesburg, VA, 19
How did you know you had Tourette?
As a kid, I had very minor tics such as sniffling and blinking, but I had no idea they were tics and neither did my family. It wasn't until I was 16 that I developed louder more noticeable tics.
Were you bullied for it? How did you deal with that, if so?
I was bullied a bit at the start. But once I started to educate people around me and stand up for myself, the bullying dissipated. My experience with being teased and mocked inspired me to become a Youth Ambassador for the Tourette Association of America, so no one else would have to go through that.
What do you want others to know about Tourette Syndrome?
Tourette presents differently. No two people experience it in the same way.
Are you working today? How do you juggle life/work/relationships with Tourette?
I am currently not working, but I used to have a job at a grocery store. It was a good experience, especially once I opened up to people about my Tourette. They were always very understanding. I handle my relationships with Tourette by always being open about it and being patient.
William Atkins IV, North West Washington, D.C. 18
Tell us about your childhood.
My childhood was amazing. I grew up with morals, values, and ethics, which helped
shape me into the young man I am today. When I was a child, I didn’t know that I
had Tourette Syndrome. However, as I started to grow older, I understood that
something was going on with my body.
Were you bullied for you? How did you deal?
Fortunately, I was not bullied, however, I have been laughed at and taunted before.
I dealt with it by deciding to spread awareness about my Tourette Syndrome.
What do you want others to know about Tourette Syndrome?
Tourette Syndrome does not make a person, for it is simply a part of them.
Are you working today? How do you juggle life/work/relationships with Tourettes?
I am currently working today and work as a Youth Ambassador for The Tourette
Association of America, I juggle my life/work relationships with Tourette
simply by being patient with myself and everything I decide to partake in.
It goes without saying, we at American Teen NEVER condone any bullying—if you’re curious about someone’s health battle, ask them about it and then do your own research. Compassion first!
Learn more about Tourette Syndrome at: Tourette.org.